Thursday, January 30, 2014

WELCOME, to Our South Bank HIVe!




23 years ago, I tested positive for the Human Immnodeficiency Virus (HIV) and began my Journey to and thru Acquired Immune Deficiency Syndrome. HIV-HIV Disease is the one thing that ALL of US diagnosed with "AIDS" have in Common. As we now know after the last 32 years; testing HIV+ DOES NOT MEAN that you have progressed to the final stage of HIV Disease which we know as AIDS, that we can prevent that progression via TESTING & TREATMENT, that we can prevent TRANSMISSION thru Safe Sex, PrEP & PEP and IT IS NO LONGER A DEATH SENTENCE!
HOWEVER, catching H.I.V. and preventing A.I.D.S. IS a Life-Long Sentence of Health Care & very expensive HART medications. There have been so many amazing Breakthroughs over the span of this Epidemic that we now have a Goal and talk about an AIDS Free Generation; NOT DUE TO A CURE FOR HIV but rather finding, identifying and then treating all those who carry the virus. AND MAKE NO MISTAKE, HIV DOES NOT DISCRIMINATE OVER WHO TO INFECT. Regardless of any Demographic that describes you, if you share bodily fluids with someone who has the virus thru unprotected sex or sharing needles during injection drug use, YOU ARE VULNERABLE! ABSTINENCE, Just say No, etc. is a ridiculous, ineffective Prevention strategy.
On the heels of AIDS 2012; a gathering to Come OUT & Stand Up! for Unity in our CommUnities

This is the print preview: Back to normal view »

Mike Alvear, Why Are Some HIV-Negative Guys Writing About HIV When They Have No Clue?

Mike Alvear, your blog posts are infuriating to me for many reasons, primarily your ignorance. You don't have HIV, so from where do you speak? I am writing specifically about your post "Why Are Some HIV-Positive Gay Men Grateful for Their Disease?" So let me answer that questions for you, because HIV-positive people like me would rather not spend the rest of our lives in the punishing, stigmatized coffin you build us with every post.
You equate HIV to a car accident in your family. That accident caused a horrible death. HIV is not the same as a fatal car crash. How can you be foolish enough to compare those two? A tragic accident in your own family and my attitudes and choices about my virus are not the same. HIV is a preventable illness, not a death sentence. Using condoms, PrEP, getting tested, antiretroviral therapy -- these things save lives.
And here I quote you: "[Disease is] an injustice heaped on innocent victims."
Who are you to call me a victim? Ever hear of the Denver Principles? Read them and weep. In the early 1980s, a group defining themselves as the People With AIDS Caucus rejected the word "victim," and HIV-positive people still do. I am not a victim, nor is my virus a burden to me any more than it is to you. Now it empowers me to speak out against you.
You are grieving for a family member and comparing that to HIV, saying positive thinking is bullshit. Erroneously, you go on to say positive thinking is a reason people might go out and infect others. This is HIV stigma based on your own faulty assumptions, not science.
Here are your words: "Don't be grateful. Don't carry the burden of trying to make HIV your friend. Like all friends, it'll expect you to be loyal and introduce it to your other friends."
So if I choose a positive attitude, I will then become a gift giver, ready to pass along my virus to everyone? What a dirty lie. HIV is my journey, not yours, and I'll treat it any way I want, using everything available to keep me healthy and active. As a matter of fact, those who know their status and choose positive thinking don't go around saying, "Let's go raw!"
The majority of transmission occurs when people don't know their status and assume everyone is negative. So you're promoting a lie, that HIV-positive people who choose to improve their mental health will eventually share the load. You're stereotyping HIV-positive people and asserting that we shouldn't work toward treating our mental health, that instead we should feel shame and live in your angry cage.
I have heard many an addict, gay and straight, say to me that HIV is the best thing that ever happened to them, a gift. And you know what? They are right, not you. They have lived it, and they might be dead in the streets otherwise. You live in a gay man's plastic bubble. I've been blessed to spend many years with recovering addicts, prisoners and the homeless. Many of them said to me that HIV was a gift because it turned their lives around. And to put it in personal terms, I've been on death's door from drug addiction, incarcerated, homeless, and eating from a dumpster. Your post smells the same as that garbage can. The humility and humanity that HIV brought to my life is a gift. The people it brought into my world are a gift. Nobody signs up for it, but to say we should all just stop thinking positive is irresponsible and deadly.
It is generational, and you and a generation who think like you need an education. Your posts on HIV are a particularly egregious example of stigma. We deserve better than to be lumped together as victims, our status a burden, our positive approach to our own mind and bodies... well, that just leads to barebacking and "gift giving." You don't have HIV and never walked a day in my shoes or those of anyone else with HIV. That is as clear as a bell.
You are pathologically AIDS-phobic, and it was a very foolish choice to be writing about HIV, especially when you choose words like "victim" and "burden" and tell me how I should think or react to my status. It is irresponsible to write your HIV blogs. Your words are loaded with hate and stigma: Don't think positive. Be angry at yourself instead. You deserve that, HIV-positive people. That's been your message.
So all illness should be marginalized and not looked upon with grace? You have no idea what it is like to be HIV-positive, homeless, or lost in this world. And you are the worst HIV/AIDS writer I have ever read. And for the record, you wrote a similar piece last week about sero-sorting blow jobs. Sero-sorting is a values decision, and your values don't jibe with mine or follow any medical science; they follow your own illogical thinking. There arezero cases of anyone contracting HIV through oral sex with a man on ARVs, with a low viral load, who takes care of his body through a positive approach to his health care. Again, you list no science to back up your claims; it's just another essay filled with prejudice.
And what do you mean by this?
Here's what I say to all my HIV-positive friends: Don't be grateful. Don't carry the burden of trying to make HIV your friend. Like all friends, it'll expect you to be loyal and introduce it to your other friends.
This is gay-male homophobic panic-in-the-streets sensationalist nonsense. Your tone reminds me of those anti-gay videos that evangelical churches churned out in the early '90s: The Gay Agenda all those hate-mongering films. You can re-title your piece "The HIV Agenda" and then send it out as a fundraiser for the religious right.
Mike Alvear, you are dealing in deliberate distortions as a way of stigmatizing anyone with HIV. Yours is not a blog post about the politics of thinking about different responses to viral infection. It's a post blaming people for getting exposed to a virus. And it's about shaming them for wanting to live happy, healthy and full lives. You go for fear and hate mongering:HIV + gay men = a fatal crash. And the rest of us negative guys had better hope that we're not on the parkway when those HIV-positive people spin out. It's ethically irresponsible essay-writing, though to call it "essay-writing" is to glorify it well beyond its meager aesthetic range. Your post reaffirms the need for our community to educate not just ourselves but the larger culture about what it means to be HIV-positive, because discrimination against HIV-positive people is replacing homophobia as an acceptable form of social and legal hatred, and you are one of those many men behind the bullhorn of intolerance.
It also angers me that anyone would turn to a man who's not HIV-positive and seemingly anoint him an oracle of HIV. Why are HIV-positive people treated as if anyone could speak for us? Or about us? Whether you realize it or not, to treat HIV-positive people as a community of pariahs distorts the truth.
You also stigmatize people who find spirituality, or God, through illness. Meanwhile, someone who seroconverts becomes ridiculous and spiritual by default. You are grossly overreaching. You're ignorant to health science, positive mental health, and the effects of transmission, criminalization, all logic in regard to HIV.
And It's not as if you wrote a piece where you canvassed a range of people who are HIV-positive, of various genders, sexual identities, races, ethnicities, economic situations, and regions of the globe, and gave an overview of the different ways in which people adjust to having HIV. That would be a great post. And that, frankly, is the level of thoroughness and seriousness with which HIV needs to be discussed, and is, as far as I can tell, never discussed by you or anyone else.
Mike Alvear, you're the worst AIDS writer. You're full of stigma. Gratitude is not your game, nor is HIV. So I wish you would stop writing about HIV/AIDS, because you know nothing about it except how to exploit the fear of it, then promote HIV stigma for your own personal gain.
I call on every HIV-positive person who agrees with me to speak out against your bigoted and baseless writing. Until you learn the facts, you will always be a menace to HIV-positive people, especially to those who fought with their own lives, their bodies, to improve medical science and the lives of HIV-positive people everywhere.
******************************************************************





Newsfeed : Super Bowl Downloads of U2 Single to Fund HIV/AIDS Fight
www.poz.com
The single will be free on iTunes for 24 hours after its debut.


FYI: While this is great -For Africa!; I find it distressing that this Great American Tradition & Event will be used with no benefit to Our HOME Team! As you may be aware, we've made the decision to push forward on our intentions to become a fully credentialed 501(c)3 Non-Profit. I will be working with a long time dear friend of mine who's an executive at Key Bank to set up our Banking Account & System and will take what funds are needed from my February Social Security check. In addition, we have bills to pay for our Domain Name registration, quarterly web-hosting invoice, Adobe Dreamweaver monthly subscription, etc. I am committed to sign on as 1 of the incorporators and will serve as the initial Full time, Volunteer (unpaid) Executive Director and am actively recruiting (hopefully, other HIV+) people to serve on the initial Board of Directors and slate of Officers. What will make The South Bank HIVe & Friends different from what has come before us is FULL, OPEN & HONEST Communication with our Public & Supporters. WE will answer all questions from the Cincinnatiti BBB and submit to their Charity Standards review. Thank you for your past help and support for our Endeavors and we look forward to its continuation in the future!  


Charity Contact Information

Name:AIDS Volunteers of Northern Kentucky
Address:314 War Horse Place
Crestview Hills, KY 41017
Phone: (859) 261-2143 (859) 261-2143

BBB Wise Giving Alliance Comment

Despite written BBB of Cincinnati requests in the past year, this organization either has not responded to BBB of Cincinnati requests for information or has declined to be evaluated in relation to the BBB of Cincinnati’s Standards for Charity Accountability. While participation in the BBB of Cincinnati’s charity review efforts is voluntary, the "BBB of Cincinnati believes that failure to participate may demonstrate a lack of commitment to transparency." Without the requested information, the BBB of Cincinnati cannot determine if this charity adheres to the Standards for Charity Accountability. A charity's willing disclosure of information beyond that typically included in its financial statements and government filings is, in the Alliance's view, an expression of openness that strengthens public trust in the charitable sector.
The BBB of Cincinnati reports on national charities and determines if they meet 20 voluntary standards on matters such as charity finances, appeals, and governance. The BBB of Cincinnati does not evaluate the worthiness of the charitable program.

Wednesday, January 8, 2014

2014: "LET'S Look Back, Consider Advances, Acknowledge Deficiences to OUR Mission then Look Ahead"

 
December 2013
Positive Networks
People living with HIV discuss self-empowerment.
Advocates from a variety of networks of people living with HIV held a roundtable discussion earlier this year. The topic of the day was the networks themselves and the value they can have in our communities.
The roundtable, held in New York City at POZ headquarters, was based on the belief that people living with HIV should be full, active participants in the response against the epidemic and in decisions that affect them, be it within the positive community itself, on boards for local AIDS service organizations, or in governmental policy-making efforts.
This fundamental human rights concept is rooted in The Denver Principles, a self-empowerment manifesto written in 1983 by people living with HIV/AIDS. The idea was advanced at the 1994 Paris AIDS Summit with the GIPA (Greater Involvement of People Living With HIV/AIDS) Principle.

http://mwcltonline.blogspot.com/
If your Primary Care Doc -HealthCare Provider Don't Ask & You Don't Tell; are you getting Quality Health Care!?  "Fear of stigmatization prevents many people from identifying themselves as vulnerable to, at risk for, Living with, eligible and qualified for... As many as two thirds of physicians never ask patients about their sexual orientation. Some health care professionals assume that their patients are heterosexual. Others may be homophobic and hostile and prefer to avoid the issue."

Pisces: "It seems that you're ready for a major change in your life, Pisces. But take care that you don't implement change merely for the sake of change. Think carefully about what you really want to do. Some introspection just might reveal that the changes you seek are minor rather than major. You may simply want to begin working on your health a bit more. Jogging a few days a week and vowing to eat salads at lunch rather than sandwiches may bring about a wonderful ripple effect of health and well-being in your life."
 
"In 1983, the problem was getting the media to pay attention to HIV/AIDS. In 2013, the problem is getting the media to pay attention to HIV/AIDS.
In the beginning, major news outlets ignored the epidemic because it only struck marginal populations. After brief windows of concern, WE have fallen into the same pattern."

READ MORE»
The Psychological Dark Side of Gmail: Google is using its popular Gmail service to build profiles on the hundreds of millions of people who use it:
“We know where you are. We know where you’ve been. We can more or less know what you’re thinking about. Your digital identity will live forever… because there’s no delete button!? -Eric Schmidt"  This article first appeared on PandoDaily.

Friday, October 11, 2013

"C+V=G: Game of Life; Current Session..."



First, the Deck of Cards we're playing with:   

     The Wild Ones:

  • Race
  • Gender
  • Age
  • Class/Income
  • Housing
  • Health
  • Disability
  • Education
  • Sexuality

     The Jokers:

  • Religious Affiliation
  • Political Affiliation
  • Greed
  • Arrogance
  • The other 5 of the "7 Deadly Sins"
  • Neighborhood Affiliation

Thursday, September 19, 2013

HOUSING is Health Care...




Campaign to End AIDS (C2EA) – Established 2005
 

FOUR FRONT BURNER ISSUES: A Quick Overview

1.                  Reauthorize and fully fund the Ryan White CARE Act.

2.                  Keep Medicaid strong for people with HIV/AIDS and all other beneficiaries.

3.                  Strengthen the global fight against AIDS by fully funding the Global Fund and backing 100% debt cancellation.

4.                  Restore and revive effective HIV Prevention worldwide based on the best science.



HOUSING
PROBLEMS:
When it comes to HIV/AIDS, housing is Health Care, and housing is HIV Prevention. People with HIV and AIDS can't reliably manage or improve their own health care if they're homeless or in unstable housing. And people who are homeless are more likely to engage in high-risk behaviors, including sex-for-shelter or sex-for-money transactions. Medically appropriate and stable housing for all people living with HIV/AIDS will give other health care interventions a chance to work.
Poverty, domestic abuse, and rape contribute to women becoming homeless. HIV-positive women who lack safe and secure housing are less able to make and keep health care appointments and to follow difficult medication regimens and are at increased risk for infection.
And America's veterans are at particularly high risk for homelessness and HIV infection, adding to our moral responsibility to ensure funding and policies that end the twin crises of homelessness and AIDS.
 
SOLUTIONS:
Increase resources for AIDS housing
                     Stop the cuts and increase funding for the “Housing Opportunities for Persons with AIDS (HOPWA) program at HUD; fully fund McKinney-Vento, Housing Choice Vouchers and other HUD housing programs, protect and extend Section 8 subsidies
                     Establish a National Housing Trust Fund, a dedicated source of funding to produce, rehabilitate or preserve 1.5 million units of housing affordable to low-income people over the next 10 years
                     Increase incentives for state and local funding for AIDS housing and operating subsidies
 
Increase services for people who experience long-term or “chronic” homelessness
                     Authorize and fund a new program to link those experiencing chronic homelessness with permanent housing and mainstream services that will help to stabilize their lives and advance their recovery and move to self-sufficiency, with specific funds for people with HIV/AIDS
                     Match funding from states and local governments, fund multi-year renewable grants based on sound performance criteria; employ a simple application process compatible with existing housing resources; promote coordination between and among federal agencies, state agencies and local private and public organizations
 
Ensure housing and services for those returning from incarceration
                     Fund a range of comprehensive services to assist persons returning from jails and prisons to communities nationwide, including expanding Department of Justice grant programs
                     Develop expanded safe housing for women with low incomes and women who are threatened with domestic or sexual abuse
 
BENEFITS & OUTCOMES
                     Better health care for people living with HIV/AIDS and reduced expenses on homeless shelters, emergency housing, and extraordinary medical costs
                     Less HIV infections due to improved HIV prevention among formerly homeless people
                     Stronger communities and more stable families
                     Improved health and reduced homelessness for women
                     Reduced HIV infections and reduced public costs for HIV-related health care
                     Living conditions for women that improve health outcomes

Friday, July 19, 2013

2013 state HIV conference: Would you like to REPresent? Faces of AIDS

 
"If you focus on your unique attributes and your ability to navigate the through the curious twists and turns of today's circumstances, this can be a fine day, Pisces. With the Moon being located in your sign, however, you have to be careful not to become gullible in the face of others' wiles. If you follow your instincts at a very basic level, it's not likely that you'll feel that something counter to your own best interests is OK. Regardless of what others are telling you, trust your intuition and you'll come out on top."

“He who conceals his disease, can not expect to be cured”

"You need to gain some perspective today, Pisces, especially where financial matters are concerned. The Moon's transit brings an opportunity to gain some clarity on things that have been foggy, or that you've had a mistaken view of - take advantage of this to look at your financial picture from both sides. Your own views could have been influenced by others in a way that is not of as much benefit to you as they could be; get a second opinion before accepting what others say - you can turn the situation around."





10 W 10th Street-Suite #7 * Covington, Kentucky 41011

859-261-HIVe1 (4481)

"Michael sweetie, you'll be more than happy to let people know who you are - where you come from by displaying openly how you feel in an artistic manner. This is a day to get your name linked with wonderful people. With a mysterious air about you in a quiet way you can stun people with your fanciful and creative imagination. You can save someone from the blues by presenting them with a small gift and a hearty smile. You will finally understand the magic in a close friendship when something brings you together with an old friend."

Subject: 2013 state HIV conference

Hi Michael,
I left you a message about this. The state annual HIV conference is Aug 2 & 3. The closing session is planning a revisit wiht some of the folks who participated in the Faces of AIDS campaign in the late 90s. I believe the photographer will be attending. Would you like to also present? It would be during the closing plenary for about 5 minutes about where you are today. 
Would you like to attend the conference? We can arrange for room, scholarship and transportation. Please let me know as soon as you are able. Thank you.
Bob Ford, M.Ed.
Senior Health Educator
Northern Kentucky Independent District Health Department
Community Health Promotion
2388 Grandview Drive
Ft. Mitchell, KY 41017
Main: 859.341.4264 (x 2085)
Fax: 859.578.3689
Email:
Robert.Ford@nkyhealth.org
Web: www.nkyhealth.org
Twitter: @HIVTestGuy

"Promoting and protecting the health of Northern Kentucky by providing public health services essential for a safe and healthy community."
"The laws of our land are catching up to the fundamental truth that millions of Americans hold in our hearts: when all Americans are treated as equal, no matter who they are or whom they love, we are all more free." President Barack Obama, June 26, 2013 on the occasion of the Supreme court rulings on DOMA and Prop 8.
 
@SoBankQueenBee is honored, grateful, and aware of the Opportunity to further the Health & Wellness of Kentuckians living with HIV/AIDS here in Northern Kentucky on The South Bank and wild Horses couldn't keep me from REPresenting the South Bank HIVe!
 

http://www.MWCLTonline.org/







Friday, July 5, 2013

"P.R.I.D.E." 2013: Thriving Survivors Living with HIV/AIDS

Happy Pride weekend! Let's all take a moment to remember the people who made all of the advances we've seen recently possible: from Harvey Milk to Matthew Shepherd to Edie Windsor and everyone in between, both famous and infamous, both known and unknown. Let's make THEM proud too.
 
 
"Michael honey, really listen to what people have to say and get ready to share gratitude or compassion in your own charming way. You hold the key to some amazing connections that you can make this week. Stay confident with a strong will as other people will see you for the powerful person you are. Being the kind of person you are you will find it very easy to fit in with others who are totally different from you. This is a promising day for good results in connection with your finances and goals you are aiming for..."

"...Since I’d already lost my job, which was the only thing of value that I had feared to lose, I became quite candid in discussing my situation with people I felt were interested and would be supportive. That included friends, family, doctors, lawyers, AVOC counselors and community leaders. Through this, as I mentioned before, I’ve discovered a lot about the myths and misconceptions about this disease. And again, while I was not surprised by those of the straight community, I was most surprised by those of the gay community. Most people believe that (Full-blown)AIDS = Death and, tragically, that is usually true. A great many also believe, as I once did, that being HIV positive = AIDS (which in turn = Death). That is simply not true, there is a big difference between the two. To understand this, consider the T-Cell Count which is a primary indicator of health in HIV infection. A normal, healthy count falls in the range of 900-1200, while a count of 250 or less is the norm when a person becomes sick, is diagnosed with AIDS and eventually dies. That leaves a range of about 250-900 where a person is below normal yet still healthy. The accumulated research now shows that being HIV positive is a condition similar to Diabetes and, as such, is classified as a Chronic, Controllable disease. The key to being controllable, however, is Early Detection and Intervention. And that, my friends, is the single most important reason why everyone should take the HIV test. Especially anyone who has ever engaged in what is now considered unsafe sex, even if it was years ago or not very often. This virus has been around a lot longer than we think and it only takes one contact to get it. Look at this as being as important as voting, if not more so, and apply the same slogan; “There’s no good excuse!”
And speaking of excuses, I’ve probably heard them all and even used a couple myself at this point. They include, but are not limited to, the following:
*I’m healthy, I have the usual little illnesses which I get over normally and have none of the major symptoms of AIDS.
*When I first came out years ago I had unsafe sexual encounters, but I was never a bed-hopping slut with multiple contacts or engaged in group or kinky sex.
*When AIDS hit here in 1985 and we became aware of it and learned about safer sex; we changed our behaviors.
*What if a couple gets tested and one is and one isn’t, what’ll happen to the relationship? Knowing isn’t worth the trouble it may cause.
*What about my job, my home, my friends and family? There’s too much that could be lost if I’m positive and it gets out.
*If I’ve got the virus I’m going to eventually get AIDS and die and there isn’t anything I can do about it, so there’s no reason to bother being tested.
However, many of these excuses are grounded in the myths and misconceptions about HIV and AIDS that many people still believe. If they would learn the truth, they would realize that there are things that can be done and much more to be gained than lost..." October 1991
 This is alarming: of 13 to 24 year olds with HIV, most don't know they have it and an even higher number aren't getting any treatment for it. What can we do to fix that? 
"I’ve been asked to talk about the Denver Principles and their relevance today. The first question is, Why do we revisit the Denver Principles? It’s very simple, they’re the foundation of the People with HIV Self-Empowerment Movement. They show us how earlier activism influences our struggle today and what we can learn from that experience.

The Denver Principles are also the foundation of building a grass roots movement, one led by people with HIV, into a powerful voice. They also give us an opportunity to participate in the broader global movement towards the Greater Involvement of People Living with HIV and AIDS– greater and meaningful involvement, sometimes called GIPA.

Self-empowerment is what enables us to demand resources from government for treatment, care and prevention. Self-empowerment is what gives us the authority to speak to complex ethical considerations with research and treatment; like pre-exposure prophylaxis, the proposal to give HIV meds to those who are HIV negative but believed to be at high risk of acquiring HIV; or the “test and treat” proposals that we’ve been hearing so much about lately, that propose to test everybody and put virtually all of those who test positive on treatment, whether they need it or not.


, President and CEO, AIDS United: "Where the Hell Is Our Community?"

Where the hell is our community?
 
I've been reading And the Band Played On, and for some reason, it feels more like a commentary on today's news than a historical account of the discovery of AIDS. As I read about the emerging infections on both coasts, along with Kaposi's sarcoma and pneumonia leading to gay-related immune deficiency (GRID) -- eventually named acquired immune deficiency syndrome (AIDS) -- the pages reveal a disturbing struggle to get anyone to care about it, even the gay community, which was being hit so horribly hard.

Chapter 13, April 2, 1982: "[O]f the 300 cases in United States, 242 were gay or bisexual men, 30 were heterosexual men, 10 were heterosexual women, and 18 were men of unknown sexual orientation." Today, 31 years later, the Centers for Disease Control and Prevention (CDC) estimates that more than 1.1 million people are living with HIV and AIDS in the United States, and the vast majority are still gay men.
This month I was invited to participate in a meeting of more than a dozen federal legislators and a dozen leaders from the lesbian, gay, bisexual, transgender and queer (LGBTQ) community. The meeting was to talk about the LGBTQ community's political priorities. I discovered that I was fully out of sync with my fellow national LGBTQ leaders. The conversation went something like this: Defense of Marriage Act (DOMA), Employment Non-Discrimination Act (ENDA), DOMA, DOMA, ENDA, immigration, DOMA, ENDA. Had I not been there, I truly believe that HIV would have never been mentioned at all.
Don't get me wrong: I believe that gay marriage, employment nondiscrimination and reforming immigration laws as they pertain to same-sex couples are worthy battles and should be priorities. But I'm heartbroken that HIV/AIDS has fallen off the gay radar. In fact, it hasn't mrely fallen off; it's been politely removed! It feels like it has been set aside because it requires conversations about more difficult topics, like sex, drugs and poverty, unlike the less-complicated message of love that is the cornerstone of the marriage talking points. We've de-sexed "gay" to win political wars about marriage and, as a result, abandoned confronting a sexually transmitted infection that is devastating our community.
In 2011, with an estimated 49,273 new HIV infections in the U.S., some 31,890 were among men who have sex with men, according to the CDC. In some major cities, CDC-funded research estimates that as many as 20 percent of all men who have sex with men are now HIV-positive. And if you break that down to race, I've heard it said that the chances of a young black man who has sex with men becoming HIV-positive before he is 50 is close to 1 in 2. Gay men are the only community that continues to see an increase in new infections. Where the hell is our community?
Chapter 15, 1982: "[Marcus] Conant ... had the knowhow and resources to conquer this disease ... We could win the fight, but nobody is willing to make the effort or even acknowledge there is a battle out there to be won." To be sure, years later, the battle became clear, and resources were mobilized. As infections spread to the more "valued" among us, like hemophiliacs, "innocent" children and heterosexuals, America took note. By 1990 the Ryan White Act was passed, and systems of care began to grow. But it wasn't until the last three years that the statement "we can win the fight" became true, at least in my opinion. Today, thanks to research funded by the National Institutes of Health (NIH), we know that early treatment can reduce sexual transmission by 96 percent. We know that if we truly scaled up testing, told every member of our community, "You need to know your status, and you need to be part of the solution," and helped those who are infected get into care, we could probably half the infections in no time.
But instead, our community has decided that we can live with this, I think. We can all take pills when it gets bad and manage as we need. Folks are living longer, treatments work, and, yes, I can still do my job, have sex and be loved. But let us not forget that the lifetime treatment cost is estimated to be over $350,000 per infection. Every day we are diverting billions from our own community to take care of that virus that we dare not stop. Let us not forget that 15,000 folks still die every year after living with an HIV-positive diagnosis. Each year 9,000 men who have sex with men who previously lived with HIV are now dead. We're losing more gay and bisexual men with HIV each year across the U.S than the average gay pride festival often dreams of pulling in.
Our community has decided to live with this, not talk about it, but live with it. Heads held high as we fight for gay marriage, employment nondiscrimination and so much more, but please, just please don't talk about sex, let alone AIDS! The thing is that we don't have to live with HIV. I mean some of us do -- I do -- but as a community, we can end this. We can all know our HIV status tomorrow, we can get into treatment, and we can be the ones who write the last chapter of this epidemic, the ones who finally stop the band from playing on and on. Of course we gay people deserve the same rights like marriage and employment nondiscrimination! Heck, I want that. But let's not kid ourselves: Some in our community will pick that monogamous relationship, but others will not. And the vast majority will not go "straight" to marriage, do not pass dating, but instead will become part of that growing pool of young gay men in major cities, that pool in which one in five is now infected.
We can live with this, but we don't have to. We can change it when our community as a whole says, "Not knowing your status is unacceptable," and, "Getting linked to care is as important as flying the rainbow flag."  We can end this epidemic, but until our community talks about it, makes it a priority, says, "HIV is at the top of our agenda," I fear we will only see more generations of young gay men becoming infected. I fear that the band will indeed be playing on and on and on.
Where the hell is our community?
 
“Habit 5 – When we listen with the intent to understand others, rather than with the intent to reply, we begin true communication and relationship building. When others feel understood first, they feel affirmed and valued, defenses are lowered, and opportunities to speak openly and to be understood come much more naturally and easily. Seeking to understand takes kindness; seeking to be understood takes courage. Effectiveness lies in balancing the two.”
 
June 27, 2013
People Who Don’t Get It
Living with It
by Madisyn Taylor
When dealing with people who seem very unaware, remember that everyone must find their own way to awakening.
 
You may be someone who understands the true nature of reality, perceiving deeply that we all emanate from the same source, that we are all essentially one, and that we are here on earth to love one another. To understand this is to be awakened to the true nature of the self, and it is a blessing. Nevertheless, people who just don’t get it are seemingly everywhere and, often, in positions of power. It can be frustrating and painful to watch them behave unconsciously. We all encounter individuals of this bent in our families, at work, and in all areas of public life. It is easy to find ourselves feeling intolerant of these people, wishing we could be free of them even though we know that separation from them is an illusion.

It helps sometimes to think of us all as different parts of one psyche. Just as within our own hearts and minds we have dark places that need healing, the heart and mind of the world has its dark places. The health of the whole organism depends upon the relative health of the individuals within it. We increase harmony when we hold onto the light, not allowing it to be darkened by judgment, anger, and fear about those who behave unconsciously. It’s easier to accomplish this if we don’t focus on the negative qualities of individuals and instead focus on how increasing our own light will increase the light of the overall picture.

When dealing with people who seem very unconscious, it helps to remember that every one must find their own way to awakening and that the experiences they are having are an essential part of their process. Holding them in the light of our own energy may be the best way to awaken theirs. At the same time, we are inspired by their example to look within and shed light on our own unconscious places, sacrificing the urge to judge and surrendering instead to humble self-inquiry.